Liite 4: Clearing A Space Instruction

Modified*, ** by Zack Boukydis, Ph.D.

  1. Turn your attention to the CENTER OF YOUR BODY (where you tend to feel things/experiences).
  2. Ask yourself, "HOW AM I RIGHT NOW?" (Do not answer right away; just notice how you are, there {in the center of your body} for 15-30 seconds). There may be a word, words or an image which arise as you are paying attention.
  3. Now ask "IS THERE ANYTHING IN THE WAY OF FEELING OK, RIGHT NOW?" Don't answer quickly, --- let what comes in your body do the answering. Don’t answer quickly from your head. Wait for a FELT SENSE (in your body) of a concern (or concerns) to form.
  4. If there is a concern, (or concerns) Find A WORD, PHRASE, OR IMAGE that resonates with the quality of how the concern feels in your body.
  5. Imagine putting each concern ‘OUT OF YOUR BODY’ , i.e. up on a shelf in front of you. [the concern doesn’t disappear, but it is not ‘in the center of your body’]
  6. REPEAT steps 3-5 again until each concern has been placed outside your body.
  7. Now ask, “Except for these concerns, CAN I NOW FEEL OK? (FINE, WELL)
  8. If you are able to feel ok (or fine, well), NOTICE HOW THE ‘OK’ FEELS. Just stay with the feel of ‘ok’ there in your body. There may be a word, phrase, or image for this ‘ok-ness’. Repeat (or resonate) the word, or phrase and see how it relates to your body felt sense of ‘OK’

*Focusing. Eugene Gendlin (2007) New York: Bantam Books

** Focusing-Oriented Psychotherapy Eugene Gendlin (1996) New York: Guilford Press

Notes

  • You can read this text on clearing A Space online or print out a version to keep with you offline.

PDF Download

Access the PDF file for Clearing A Space Instructions here.

Liite 6: Vanhempien kanssa havainnointi

Miten harjoituksesta kerrotaan vanhemmille?

Etukäteen voi kertoa, että osastolla on meneillään koulutus, jossa harjoitellaan uusia tapoja työskennellä vanhempien ja perheiden kanssa. Uusien tapojen tavoitteena on vahvistaa vanhempien roolia ja ”ääntä” oman lapsensa asioissa ja lapsensa parhaana tuntijana. Tähän liittyen vauvanne osastolla olo-aikana pyrimme järjestämään yhteisen hetken tai hetkiä vanhempien tai vanhemman kanssa, jossa tutustumme yhdessä kaikessa rauhassa vauvaanne.

Katseluhetken alussa:

  1. Olemme varanneet nyt rauhallisen hetken siihen, että voimme yhdessä tutustua vauvaanne ja katsella yhdessä, mitä hän tekee ja esim. mistä hän pitää tai ei pidä. Havaintojamme voidaan myös hyödyntää vauvanne hoivan suunnittelussa osastolla.
  2. Olisiko mahdollista, että katselisimme vauvaasi/nne pienen hetken yhdessä niin, että välillä sinä/te ja välillä minä/me kommentoisimme ääneen sitä mitä hän tekee (miten hän käyttäytyy, kuinka hän vastaa käsittelyyn/hoitoon, syöttämiseen, vaipan vaihtoon, jne.)
  3. Lopussa voimme koota huomioitamme koosteeksi paperille. (Katso kuinka minä kehityn –lomake)

Houm!

Lomaketta voi käyttää reflektion ja yhteenvedon tekemisen apuna  yhdessä mentorin kanssa.

PDF ladata

Siirry lomakkeen pdf -tiedostoon. 

Liite 8: Toistetut havainnointihetket vanhempien kanssa

Käytät tätä lomaketta yhteenvetoon vauvan käyttäytymisen toistetuista havainnoinneista liittyen seuraaviin seikkoihin:

  1. Muutokset vauvan käytöksessä ja kehityksessä.
  2. Muutokset, joita havaitse vanhempien kommenteissa vauvastaan tai tuntemuksissaan vauvaa kohtaan tai heidän vanhemmuuden roolissaan.
  3. Vanhemman ja vauvan välisen vuorovaikutussuhteen edistyminen (puhe, katsekontakti, kosketus, läheisyys jne.)
  4. Vanhemman ehdotukset liittyen vauvan hoivaan.
  5. Kuinka yhdessä katselu vaikuttaa vanhemman osallistumiseen vauvan hoitoon ja heidän väliseen suhteeseen.

Huom!

Tätä lomaketta voit käyttää yhdessä Katso kuinka kehityn -lomakkeen kanssa, kun havainnoit samaa vauvaa toistuvasti.

Lataa PDF

Siirry lomakkeen pdf -tiedostoon. 

Appendix 4: Clearing A Space Instruction

Modified*, ** by Zack Boukydis, Ph.D.

  1. Turn your attention to the CENTER OF YOUR BODY (where you tend to feel things/experiences).
  2. Ask yourself, "HOW AM I RIGHT NOW?" (Do not answer right away; just notice how you are, there {in the center of your body} for 15-30 seconds). There may be a word, words or an image which arise as you are paying attention.
  3. Now ask "IS THERE ANYTHING IN THE WAY OF FEELING OK, RIGHT NOW?" Don't answer quickly, --- let what comes in your body do the answering. Don’t answer quickly from your head. Wait for a FELT SENSE (in your body) of a concern (or concerns) to form.
  4. If there is a concern, (or concerns) Find A WORD, PHRASE, OR IMAGE that resonates with the quality of how the concern feels in your body.
  5. Imagine putting each concern ‘OUT OF YOUR BODY’ , i.e. up on a shelf in front of you. [the concern doesn’t disappear, but it is not ‘in the center of your body’]
  6. REPEAT steps 3-5 again until each concern has been placed outside your body.
  7. Now ask, “Except for these concerns, CAN I NOW FEEL OK? (FINE, WELL)
  8. If you are able to feel ok (or fine, well), NOTICE HOW THE ‘OK’ FEELS. Just stay with the feel of ‘ok’ there in your body. There may be a word, phrase, or image for this ‘ok-ness’. Repeat (or resonate) the word, or phrase and see how it relates to your body felt sense of ‘OK’

*Focusing. Eugene Gendlin (2007) New York: Bantam Books

** Focusing-Oriented Psychotherapy Eugene Gendlin (1996) New York: Guilford Press

Notes

  • You can read this text on clearing A Space online or print out a version to keep with you offline.

PDF Download

Access the PDF file for Clearing A Space Instructions here.

Appendix 7: CLIP-I(initial) The Close Collaboration with Parents Program.

Modification from original Clinical Interview for Parents of High-Risk Infants by Meyer et al. (1993)

1. Infant’s Current Condition

“I wonder if you would tell me how your baby is doing now.”

2. Pregnancy Course

“I’d like to have you discuss a bit about your pregnancy. Let’s start with your initial reaction—What was that like? Overall, how was it for you physically? Emotionally? When did the pregnancy begin to seem real to you?”

3. Labor and Delivery

“Tell me about your labor and delivery. What were your thoughts? Feelings? Were you aware of having concerns about yourself during that time? About your baby? How did it compare with what you expected? Was your spouse (partner) with you in the labor? How that was for him?”

4. Baby’s Transition from Labor Room to the Unit

“Tell me about your baby’s transition from labor room to the neonatal intensive care unit. How did it go? What were your thoughts? Feelings? What about now, how do you feel about the transition? Was your spouse (partner) with your baby during transition? How that was for him; for you?”

5. Relationship with Baby and Feelings as a Parent:

“When did you see your baby for the first time? How did you react when you saw her/him? What is your baby like now? Do you feel your baby knows you? How do you feel about your baby? Have you had any feelings as if you are not sure your baby really belongs to you? How much you would like to take responsibility for the care of your baby during the hospitalization? Do you feel that you are now participating in and taking responsibility for your baby’s care in the way that you want? Do you feel that you would need more support or direction during the everyday care of your baby? How it is for you to go at home and leave your baby in the hospital? How does it feel to be at home now? ”

6. Relationship with Family and Social Support

“Who is in your family? What has this experience been for your spouse (partner). How has your relationship been affected? If the family has other children, you may ask. You have other children, could you tell me more about them? How have your other children reacted? What about the rest of the family; how have they reacted? Who (other family members, relatives, friends) is available to you for help and support at this time? Who could be providing most help for you right now? (The purpose of this question is more to check from whom this person can accept help.) Who provides emotional support for you? Who could provide emotional support if you felt you needed more support?

7. Reactions to the NICU Environment and Staff

“Describe your first reaction to the intensive care nursery. How have you experienced being  in the unit as a parent? From your point of view, what have been the positive aspects of the nursery? What have been the most negative aspects of the nursery? Is there something you would like to change in the care of your baby now? As a parent, do you have wishes for the staff concerning the care of your baby? What would you like the staff to change, or improve, related to the care of your baby?

 

Notes

You can read the CLIP-I(initial) text here online, or download a PDF file to print out and access offline during discussion with parents.

PDF Download

Access the PDF file for the CLIP-I(initial) here.

Appendix 9: Planning/preparing for hospital-to-home transition of preterm infants

Two examples of individual summaries regarding the baby’s care for transition to another hospital, written jointly with parents.

Example 1 Maiju February 14, 2012

My name is Maiju. I am a little girl. At the moment I am just over two months old. I was born at 27 +0 weeks of gestation and my weight at birth was 490 g. Now I weigh a little less than a kilo and a half. The first few weeks of my life were challenging, as I spent quite a long time on life support. At the moment I can manage breathing with a high-flow nasal cannula. At times my breathing still gets difficult, It takes me a lot of effort and energy to breath, and I still need supplemental oxygen. When they take care of me, I can make it fine with an oxygen mask / cannula or for a short time - with no extra support. I like it when they pat me and this contact is good for me. Now, I don’t need to be suctioned too often.

I still get milk mainly through my feeding tube, but I have already been practicing eating a few times. My tummy easily collects air (gas) and therefore it is important that you aspirate any air from my tummy through my nasal tube before my meals. Because my tummy easily bothers me I like to sleep on my tummy. But please do not wrap me too tight – I like to be able to move my hands. I'm a stubborn and strong fighter. I may be small, but I am feisty!

These are the care methods that I like:

  • I like kangaroo care, and I have had a chance to enjoy it with my parents almost every day!
  • Also music calms me down!
  • I like it when you talk to me when you take care of me; or just about any time.
  • Being held in a tucked position by firm hands comforts me when something is annoying me or when I need to have a treatment that is uncomfortable for me.
  • Often I like to grab just about anything I can reach with my hands. Cords and wires are nice.
  • I also like to have my hands free, and often I keep them close to my face.
  • My pacifier is very important to me! It is also nice to get a taste of a few drops of milk with a meal.

Example 2 Niko January 3, 2012

I am Niko. I am a small and adorable boy. I was born on January 3, 2012, at 26 +6 weeks of gestation. Now I am over a month old, and my weight is about 1.5 kg. The first three weeks I spent on life support, but now I can manage with CPAP or high-flow cannula with no additional oxygen. When they take care of me, I can make it fine with an oxygen mask or without any support for a little while. I like being tapped, and it is good for me. Suctioning is something I do not like at all, and you do not need to suction me every time that you take care of me. I still get my milk through my feeding tube, but I've already been to my mother’s breast and have had a little taste of her warm breast milk. Sometimes they give me a few drops of milk in my mouth. I like my pacifier a lot. I have often hiccups.

When you take care of me, there are some things I don’t like at all, for example undressing, or washing, or changing my diaper. I do not like to be cold, so please dress me quickly. I don’t like bright lights. I am observant when I am awake and I have a gutsy disposition. I have my own will but I can also calm down easily. When it is time to sleep, I sleep calmly and peacefully.

These are the care methods I like:

  • Kangaroo care; my parents come daily and they give me kangaroo care.
  • Being held in a tucked position by firm hands. Sometimes someone holding their hand on my head soothes and comforts me when there are some procedures that are annoying me.
  • I really like it when you brush my hair.
  • Often I bring my hands close to my face and can keep them there.
  • I like to listen when you talk to me, for example when you change my diaper.
  • I really like to grab all the wires and cords. I like to grab my father’s and mother’s fingers, too. I also like to have a comforting device (e.g. the Zaky Hand) next to me.
  • I really like my pacifier. It is also nice to get a taste of a few drops of milk with a meal.

Appendix 10: Considerations for Family-centered approach for a pediatrician

Policies in the University Hospital in Turku, Finland

Before birth

  • Prenatal consultation by the pediatrician
  • Based on the family’s questions
  • Remember the elements of the CLIP interview
  • Tell the parents that their presence and participation is an essential part of good intensive care for the baby
  • Tell the parents that they have a possibility to participate in care of their baby and in decision making concerning their baby
  • Tell about the importance of the doctors’ rounds as information sharing moments where the parents are welcome any time they are able to come
  • Tell about the importance of the mother’s milk for the child
  • Parents visiting NICU before birth

After birth

  • When the baby is being transferred from the delivery unit to NICU, the father is coming along.
  • The pediatrician is to see the mother as soon as possible after the baby has been stabilized, bringing the mother a photo of her baby
  • No later than two hours after the delivery

Daily rounds

  • The parents are the first ones to report about their baby
  • Listen to the parents’ close observations and concerns regarding their baby
  • Problem solving individually based on the baby’s signals
  • Encourage the parents to have their baby in the kangaroo care as soon as possible; at the same time listening to the parents’ own wishes about kangaroo care
  • Individual agreements with the families regarding their participation in care procedures when the family shows desire to participate, e.g. parents’ desire to participate in adjusting the amount of oxygen given to the baby, acknowledging alarms, suctioning airways – according to the mutual written agreement by the doctor, primary nurse and parents
  • Parents are allowed to be present during treatment procedures
  • Parents can comfort their baby / ease pain e.g. by ‘facilitated tucking’ of their the baby with their hands

Weekly discussions

  • Based on the questions the family has
  • Remember the elements of the CLIP interview

Before transition from hospital-to-home

  • If the baby has been hospitalized for a longer time or was born as a small preterm infant, give the baby’s medical summary to the parents approx. 5-7 days prior to the planned day when parents will take their baby home and have them read it through
  • Go through the medical summary together with the parents at the wrap-up discussion during the last week they stay in hospital

Hospital-to-home transition based on the parents’ concerns

  • The parents participate and consider what they would need for the transition from hospital to home; and in which order they would like to go through the following things:
    • Issues to be taught (medication at home, nutrition)
    • Follow-up visits to the child development clinic
    • Public health nurse from child health clinic visiting NICU before parents take their baby home. Parents may want to make the phone call to the public health nurse or they may ask the nurse to make it.
    • Rooming-in with the baby in NICU at least for one or two nights before parents take their baby home
    • Baby visiting (day visit or overnight according to the parents preference) at home before the final transition from hospital to home
    • Consultations, possibly a multi-professional care conference

Appendix 11: Reflective group supervision and some guidelines

Reflective supervision is a relationship–based supervisory approach (Heffron & Murch, 2011). Reflective supervision is especially beneficial in the fields of infant mental health, early childhood services and family support. In these fields the relationship formed with parents and coworkers is a crucial route to provide support or therapeutic intervention. There are certain crucial elements in building a relationship with parents, such as listening and acceptance which make the development of trust possible and which provide the necessary foundation for therapeutic change. As each trainee is listened to and respected in what they have to say, they are in turn more capable of developing the capacity of listening to parents and other colleagues. Also in this training model we believe that being heard and accepted by the supervisor is providing a model and a core experience, which trainees can use in their work with families.

Essential elements of reflective group supervision:

The reflective supervision group should be organized to meet frequently. Depending on the size of a unit the groups can be either open or closed groups. An open group means that the combination of participants differs each time a group meets. For example the combination of participants can be based on units’ work schedule. In that case, it is very important to keep track of each how frequently each individual staff member is able to participate in the supervision group. The other form of group supervision is a closed group which means that the participants of a group are always the same. The closed group assures the regularity of supervision for individuals. Also there is an increased likelihood that closed groups can be experienced as more secure than open groups. However, open groups can have other benefits like dissemination of novel ideas to a wider range of individuals.

Supervisors create an atmosphere of safety in supervision sessions by taking the role of container, and by a creating respectful atmosphere. Every issue brought up in supervision is handled with respect for that persons’ perspective and with honor to her/his work in the NICU. The secure atmosphere, in turn, helps people to genuinely express their thoughts, feelings, worries and concerns. Solutions or new perspectives are always explored in a collaborative way by developing a commitment to thinking together rather than quickly rejecting new ideas. In this training model supervision is not based on an attempt to direct work from a distance by telling the supervisee what to do. Rather, the supervision is offering an opportunity to think and wonder in collaboration with the supervisor and other colleagues. In this way all are partners contributing their experience, knowledge and intuition into the ongoing process. If followed consistently, reflective supervision and the atmosphere of safety inherent in it, might generate novel approaches, strategies and practices which can be applied to daily work in the NICU.

The reflective supervision supervisors’ responsibility is to help supervisees develop and exercise their capacities to explore how their work is filtered through their own perspectives, and those of parents, babies and other colleagues. One goal of reflective work is to become more conscious about one’s internal responses and not-yet-conscious experiences. Another goal is to learn that other people have a viewpoint of their own, and they can have their own internal responses that are not always immediately evident or quickly understandable. One important supervisor’s technique, to help trainees to experience how it feels when somebody is trying to understand what you “really” mean, is by repeating what was just said with their own words so that it reflects the supervisor’s understanding of the meaning for that person.

In the Close Collaboration with Parents training supervision should mostly focus on thoughts, feelings and questions that are generated from the actual events that occurred during training practice. From our experience the best way to explore these is to move beyond a generalized discussion and ask trainee to bring cases (concrete situation that occurred during practice) with them to supervision sessions. Trainees can, for example, tell about their individual practice with a certain baby and family. The supervisor can facilitate the trainee to tell the whole “story” about that particular situation with the family. The trainee can be encouraged to talk about what happened and how it occurred. This could be called a story telling technique that helps the trainees explore their own perspectives on an experiential level. In addition, supervisor can facilitate the trainee in exploring their experience in the situation from three different angles: how it was for herself, for the baby and for the parents. Learning to consider situations from the trainee-baby-parent triangle’s point of view, can be helpful in daily work with parents and babies.

Guidelines for the supervisor:

  • The supervisor should know the training protocol, hopefully have participated in introductory lectures about the training program; reviewed training tapes and read the training manual.
  • Supervision follows the training phases and provides reflective opportunities for trainees who are engaged in each training phase.
  • Supervision focuses on both the individuals’s and the groups’ discovery processes related to understanding of the experiences during the practice sessions and during the training overall.
  • The supervisor works in a collaborative way and with respect towards trainees’ work responsibilities and experiences in their work
  • All that is said in supervision is handled with respect and confidentiality.
  • Ensuring a reasonable size of the supervision groups makes it possible for all to participate to discussion (recommendation max. 10)
  • The supervisor may guide the trainees to be prepared before every meeting to talk about their practice sessions or other “episodes” from their work with one or more babies and parents in the unit.
  • The supervisor facilitates and guides the trainees to use reflection and the “story” telling technique by being genuinely interested, and modeling the use of respectful questions (i.e. Can you tell me more about that situation? How it started? What happened then? What about the situation was most difficult for you?, etc.).
  • The supervisor facilitates and guides the supervisees to use the ‘triadic reflection technique’, which means that each event is always reflected upon from three different perspectives: the trainee’s, the parent’s and the baby’s.
  • The supervisor recognizes and accepts individual differences between the trainees related to each person’s differing pace in adopting the new care culture.

Neonatologists can impede or support parents’ participation in decisionmaking during medical rounds in neonatal intensive care units

Aim: We explored the dynamics of neonatologist–parent communication and decisionmaking during medical rounds in a level three neonatal intensive care unit.

Methods: This was a qualitative study, with an ethnographic approach, that was conducted at Turku University Hospital, Finland, from 2013 to 2014. We recruited eight mothers and seven couples, their 11 singletons and four sets of twins and two neonatologists and observed and video recorded 15 medical rounds. The infants were born at 23 + 5 to 40 + 1 weeks, and the parents were aged 24–47. The neonatologists and parents were interviewed separately after the rounds.

Results: Four patterns of interaction emerged. The collaborative pattern was most consistent, with the ideal of shared decision-making, as the parents’ preferences were genuinely and visibly integrated into the treatment decisions. In the neonatologist-led
interactional pattern, the decision-making process was only somewhat inclusive of the parents’ observations and preferences. The remaining two patterns, emergency and disconnected, were characterised by a paternalistic decision-making model where the parents’ observations and preferences had minimal to no influence on the communication or decision-making.

Conclusion: The neonatologists played a central role in facilitating parental participation and their interaction during medical rounds were characterised by the level of parent participation in decision-making.

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